April 23, 2014

The 2014 Kenna Cup Needs our Support!

As most of you know, Kenna's Kids has been a GODSEND for our family in helping us face Charlie's medical bills. This astounding organization is now in need of our assistance. Please read on to learn how you can help out:

The 7th Annual Kenna Cup Golf tournament is going to be awesome this year. There are only a handful of spots left for players so act fast if you're interested. Register HERE. Kenna's Kids has five amazing beneficiaries this year and we want to do all we can to help them and their families with the soaring cost of medical care.

Meet the 2014 Kenna's Kids: 







SPONSOR the KENNA CUP

The Kenna Cup needs more than just players for it's tournament. Kenna's Kids needs sponsors. If you or someone you know has a business interested in participating, please contact Jeremy Pigott for information at JBP@kennaskids.org. We need you!





THE BALL DROP

If you are not in the DFW area, please consider participating in the Ball Drop!  
Balls are only 10 dollars a piece and can be purchased HERE.



Let's show these kids how very much we love them!
Support the 2014 Kenna's Kids by 
visiting their website and donating to the cause.

April 7, 2014

Upsee Adaptive Harness for Charlie

Hello Charlie Fans!

Charlie is soon going to have another piece of adaptive equipment in his arsenal. We have just ordered an Upsee Harness! Jack and I are very excited about this new development, not just for Charlie's increased mobility and access to the world around him, but for ourselves. Jack and I have spent lots of time and money on yoga, chiropractic care and medical appointments to treat our ever declining back health. Helping Charlie learn to walk, even with his gait trainer, is murder on our bodies. The Upsee might be just the answer to our prayers!

This harness, invented by a mother whose son, like Charlie, has Cerebral Palsy, became available to the public today. After showing it to one of Charlie's many enthusiastic therapists, we've decided to make the purchase. Charlie is the perfect candidate for this kind of equipment and the harness will work beautifully in tandem with Charlie's orthotic braces. Of course, our insurance will not cover this kind of device, so we're paying out of pocket. If you're interested in helping us cover the cost of the Upsee ($489), please feel free to contribute to Charlie's fund. Thank you so much for your ongoing support. We are ever grateful!



In the meantime, we can't wait to receive Charlie's Upsee and do things like THIS with Charlie in his new Upsee. There's a whole world for Charlie to explore and we can't wait to explore it with him!

All my love and gratitude,
Sarah









April 1, 2014

Something to Chew On

Whole foods for Charlie? Yes, please! Charlie has been eating whole bananas and the tops of muffins during snack time for the past four weeks. His preschool teacher has been slowly feeding Charlie bite-by-bite with lots of success. He is doing some light chewing (a big physical leap) and also waiting until his food is small enough to swallow (a big mental leap). Charlie is so happy to finally be eating some of the foods that other kids his age are able to consume with ease. Hopefully, there is more to come!